Blog

Day 183: This time last year…

This time last year he says of steroids try and suppress my immune system and reduce inflammation in my body. To say I looked awful is just my opinion but the combination of the medication caused swelling in my face and because my internal system was failing I was...

Day 180: Panda Selfie

It seems a lifetime ago and yet simultaneously a only a second that I was standing behind lift doors as they slid opened to reveal a giant panda mural/photo poster in The Royal Free Hospital in the early hours of the 26th of August 2017. My life on that day was to...

Prior’s Field School Organ Donation Talk

On Monday the 29th of January I returned to my old school, Prior's Field to talk to the current students about how organ donation has affected my family and me since my diagnosis while I was still at school. Illness crept upon me when I was least expecting it and...

What is organ donation?

Often, people ask what organ donation is. In this blog post I have tried to cover some of the major questions. If you can think of any I have missed please let me know so I can try and find out the answers to them. It’s only through education that we can encourage people to join the organ donor register and become organ donors.

What my cold has taught me

I had a cold. When I started this blog post, I was living through it. At the beginning, of this cold, I thought it was just going to be a cold. I had no idea that this cold was going to be a cold like no other. A cold when you have a suppressed immune system is a cold like no other. When on boxing day I began to feel a little ropy I took myself to bed. What I didn’t realise was that this was going to be a week that I saw a lot of my bed and any thoughts of normal everyday activities became a thing of history.
So let me take you back to then.

My Christmas Message 2017 (A Christmas Wish for Presumed Consent)

This time a year ago I was waiting for a liver transplant. A year on, and I am taking each day as it comes and loving being alive and healthier in many ways than I ever have before. So, dear reader, in between your mince pies and roast potatoes this year, I would like you to spare a moment for those who won’t be feeling quite as joyful as you and your loved ones. Across the country are hundreds of people desperately waiting for an organ transplant, without which, they will quite simply die.

The Custard Dare & Facing Your Fears

Yesterday I launched my ‘Custard Dare’ video on YouTube. Having a bucket of custard tipped over my head was not something I ever imagined happening to me, especially as I am slightly OCD when it comes to cleanliness. However, the dare was made and I suddenly realised that me facing my fears was, in fact, a chance for others to think about facing their fears too.

Today was a tough day

Today was hard. Some days just are. You struggle to find optimism in a world which should be full of hope and positivity. Despite The Daily Mirror setting up its own petition, Corbyn, and Tim Farron before his resignation have all given their support to a change in...

Things are changing!

I write this in a state of excitement as Scotland has agreed to change their law to presumed consent, which means that now it is only the UK which doesn’t have the opt-in system.

Saving lives one name at a time – new petition

Lucinda Parker Roberts set up We Are Names Not Numbers to bring together all those who are in favour of presumed organ donation. Currently there are a number of petitions and this meant that people were unsure of which petition to sign. We Are Names Not Numbers is...

Tell people, have the conversation

You are who you know We need to educate as many people as possible as to the benefits of organ donation. To do this we need to be proactive. Have the conversations. Talk to people. It's up to you to spread the message that we need change.  Almost 49,000 people in the...

Join our mailing list – Send us your details!

We are working on one central petition for presumed organ consent in the UK. By signing our petition (sending your name and email address until it is up) you are agreeing to us contacting you when we have our petition ready for a change in the law in the UK to...

It’s scary, but it’s exciting as well

My sister is a huge film buff and many years ago we first stumbled upon the heart warming (literally) film, 'Return to me' starring Mini Driver and David Duchovny. What was an interesting coincidence as in the year the film was filmed my family rented a small villa...

Organ Donation Statistic 16-17

From the look of the figures below there are around six and a half thousand people waiting for an organ transplant currently in the UK....